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Abstract

About 11% of the adult global populations is estimated to be living with type 2 diabetes mellitus (T2DM) by 2040. T2DM requires people to make decisions regarding complex therapeutic regimes, to maintain their well-being and quality of life, to manage symptoms and to reduce disease complications. All these behaviours, requiring knowledge, motivation, experience, and skills, have been referred to the concept of self-care. The intricacy and multidimensionality of T2DM self-care requires a complex approach to its overall comprehension. This Embedded Mixed Method study aims to investigate the experience of self-care in Type 2 Diabetes Mellitus adult patients. It comprises a prospective observational design, and an interpretive description. Quantitative data will be collected with validated questionnaires from 300 patients at baseline and once a year for two years on: diabetes self-care, quality of life, diabetes related distress, and sleep quality. Socio-demographic and clinical data will be collected from medical records. Qualitative data will be collected using semi-structured interviews on circa 10-20 patients, at baseline and once a year for two years, analysed according to interpretive description. Quantitative and qualitative data will be analysed separately and then merged and interpreted. This study will expand our understanding of self-care in people with T2DM. The expected outcome will be a better understanding of the effect of self-care on glycaemic control and therefore clinical outcomes and costs.

Key words: Type 2 Diabetes Mellitus, Self-care, Mixed Method Research, Research Protocol, Self-management, Self-care of Diabetes Inventory 

Self-care nelle persone con diabete mellito di tipo 2 - Protocollo di ricerca di uno studio multicentrico con metodo misto

Si stima che entro il 2040 circa l'11% della popolazione mondiale sarí  affetta da diabete mellito di tipo 2 (T2DM). Il T2DM richiede che le persone che ne sono affette prendano decisioni rispetto a complessi regimi terapeutici, per mantenere il loro benessere e qualití  di vita, per gestire sintomi e ridurre le complicanze legate alla malattia. Tutti questi comportamenti che richiedono conoscenze, motivazione, esperienza e abilití , vengono identificate col concetto di self-care. La complessití  e la multidimensionalití  del self-care richiedono un approccio adeguato alla loro comprensione. Questo studio mixed method ha lo scopo di esplorare l'esperienza del self-care nelle persone affette da diabete mellito di tipo 2. Comprende uno studio osservazionale longitudinale e una interpretive description. I dati quantitativi verranno raccolti attraverso la somministrazione a 300 persone, all'inizio dello studio e poi una volta all'anno per due anni, di questionari validati circa: il self-care nel diabete, la qualití  di vita, il distress legato al diabete, la qualití  del sonno. Dati socio-demografici e clinici verranno raccolti attraverso la consultazione delle cartelle cliniche. I dati qualitativi, raccolti attraverso interviste semi-strutturate con circa 10-20 pazienti, all'inizio dello studio e poi una volta all'anno per due anni, verranno analizzati secondo l'interpretive description. I dati quantitativi e qualitativi verranno analizzati separatamente, dopodiché uniti ed interpretati. Questo studio vuole aumentare la nostra comprensione del self-care nelle persone con T2DM. L'outcome atteso sarí  una migliore comprensione del self-care e dell'effetto del self-care sul controllo glicemico e quindi sugli outcome clinici ed i costi.

Parole Chiave: Diabete mellito di tipo 2, Self-care, metodi misti, protocollo di ricerca, Self-management, Self-care of Diabetes Inventory

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Luciani, M., Fabrizi, D., Rebora, P., Rossi, E., Di Mauro, S., Kohl Malone, S., & Ausili, D. (2019). Self-care in People with Type 2 Diabetes Mellitus – Research Protocol of a Multicenter Mixed Methods Study (SCUDO). PROFESSIONI INFERMIERISTICHE, 72(3). Recuperato da https://www.profinf.net/pro3/index.php/IN/article/view/665
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