Contenuto dell'articolo principale
Abstract
Background. Epilepsy is frequently accompanied by learning, behavioural and psychological difficulties, therefore the management of this pathology extends far beyond the use of antiepileptic drugs. The specialist-nurse-service provides a multifaceted management. This study adds new points of view on how epilepsy-specialist-nurses work, the benefits they produce and their feedback.
Objectives. The study was conducted to analyse the role of the epilepsy-specialist-nurse, its competencies, its impact on patients and healthcare system and its relevance in patient and medical-staff perceptions, to give new suggestions on how it can be useful in epilepsy teams.
Methods. Literature review to analyse epilepsy-specialist-nurse role; a quantitative research with descriptive approach to examine patients' (11) perceptions using a novel-questionnaire; applied qualitative analysis of medical staff (4) perceptions through semi-structured interviews.
Results. The epilepsy-specialist-nurse has the competences to manage the epilepsy-related issues that extend beyond medications. Patients value the ability of specialist-nurses to answer their multifaceted needs, to dedicate them enough time to discuss the impact of epilepsy on everyday-life and their feelings, giving suggestions. Doctors collaborating with specialist-nurses recognize their valuable contribute. Doctors give more information on epilepsy and medication-issues: patients prefer to consult a doctor for these issues. Conclusions. The holistic way adopted by specialist-nurses in addressing patients' needs is fundamental to improve patients' health and well-being. Medical and nursing ability to address epilepsy-related issues in a very similar way - in the items analysed - may reveal that specialist-nurses can provide high-quality assistance while achieving cost-savings. It is needed to develop a structured pathway that allows the progression of specialist-nursing, to define a clear job description, and to obtain government recognition.
Keywords: epilepsy; healthcare service* development; nurse specialist; patient* perception*. abstract
Background. L'epilessia è frequentemente associata a disturbi d'apprendimento, di comportamento e difficoltí psicologiche, pertanto, la sua gestione si estende oltre l'utilizzo di medicinali anticomiziali. I servizi infermieristici specialistici forniscono una gestione multidimensionale dell'epilessia. Questo studio offre nuovi punti di vista sull'attivití infermieristica specialistica in epilettologia, sui suoi benefici e feedback.
Obiettivi. Lo studio è stato condotto per analizzare il ruolo dell'infermiere specialista d'epilessia, le sue competenze, il suo impatto sull'assistenza e sul sistema sanitario, le percezioni che pazienti e medici hanno su di esso, al fine di offrire nuovi suggerimenti sull'utilití di questo ruolo nei team d'epilessia. Metodi. Revisione della letteratura per analizzare il ruolo dell'infermiere-specialista d'epilessia; indagine quantitativa con approccio descrittivo per analizzare le percezioni dei pazienti (11) tramite neo-questionario; studio delle percezioni di medici epilettologi (4) attraverso ricerca qualitativa applicata, con interviste semi-strutturate.
Risultati. L'infermiere-specialista d'epilessia possiede le competenze per gestire aspetti correlati all'epilessia al di lí della terapia farmacologica. I pazienti apprezzano l'abilití dell'infermiere-specialista a rispondere ai loro bisogni, a dedicare loro sufficiente tempo per discutere l'impatto dell'epilessia nella quotidianití , considerando le loro emozioni, e offrendo suggerimenti. I medici che collaborano con infermieri-specialisti riconoscono il loro prezioso contributo. I medici forniscono maggiori informazioni sulla patologia e sulla terapia farmacologica: i pazienti preferiscono consultare un medico per queste tematiche.
Conclusioni. Le modalití olistiche con cui gli infermieri-specialisti considerano e gestiscono i bisogni dei pazienti sono fondamentali per migliorare la loro salute e benessere. Le abilití mediche ed infermieristiche nell'affrontare le problematiche relative all'epilessia in modo simile – per gli item analizzati – possono rivelare la capacití degli infermieri-specialisti a fornire assistenza di alta qualití , ottenendo risparmi economici. È necessario sviluppare un percorso strutturato che permetta l'evoluzione della pratica infermieristica-specialistica, definire una chiara job-description, ottenere il riconoscimento governativo/legislativo.
Parole chiave: epilessia; sviluppo servizi sanitari; infermiere specialista; percezioni pazienti.
Dettagli dell'articolo
Riferimenti
- Appleton R. E. and Sweeney A. (1995). The Managment of The Epilepsy in Children: The Role of the Clinical Nurse Specialist. Seizure, 4: 287-291.
- Cecchetto P. (2011). Le indagini di costumer satisfaction nei servizi [dissertation]. Padova: Universití degli studi di Padova, Facoltí di Scienze Statistiche.
- Epilepsy Action (2010). Best Care: the Value of the Epilepsy Specialist Nurse. Liverpool.
- Foley J., Oates J., Mack C. and Fox C. (2000). Improving the Epilepsy Service: the Role of the Specialist Nurse. Seizure 9: 36-42.
- FOREP Fondazione per la ricerca sull'epilessia e sindromi correlate (2012) Che cosa è l'epilessia.
- Goodwin M., Higgins S., Lanfear J. H., Lewis S., and Winterbottom J. (2004). The Role of the Clinical Nurse Specialist in Epilepsy. A National Survey. Seizure 13: 87-94.
- Higgins A., Elliott N., Varley J., Tyrell E., Downes C., Begley C., Clarke M. (2017). An Evaluation of the Role of the Epilepsy Speciaist Nurse and the Impacton Care: SENsE Study. Dublin: Epilepsy Ireland.
- Higgins S. (2008). Outlining and Defining the Role of the Epilepsy Specialist Nure. British Journal of Nurse 17(3): 154-158.
- Hopkins J. and Irvine F. (2012). Qualitative Insight into the Role and Practice of Epilepsy Specialist Nurse in England: A Focus Group Study. Journal of Advanced Nursing 68(11): 2443-2453.
- Joint Epilepsy Council (2013). Guide to Writing a Business Case for an Epilepsy Specialist Nurse. Joint Epilepsy Council.
- Hawthorne G., Sansoni J., Hayes L., Marosszeky N., Sansoni E. (2014). Measuring patient satisfaction with health care treatment using the Short Assessment of Patient Satisfaction measure delivered superior and robust satisfaction estimates. Journal of Clinical Epidemiology 67: 527-537.
- Marshall G.N. and Hays R.D. (1994). The patient satisfaction questionnaire short-form PSQ-18. RAND, S. Monica (CA).
- Meads, C., Bradley, P., & Burls, A. (2003). The Effectiveness of Specific Epilepsy Services. York: Centre for Reviews and Dissemination.
- National Institute for Health and Clinical Excellence (NICE) (2012). The Epilepsies: the Diagnosis and Management of the Epilepsies in Adults and Children in Primary and Secondary Care. London.
- Ruggeri M., Dall'Agnola R. (1993). The development and use of the Verona Expectations for Care Scale (VECS) and the Verona Service Satisfaction Scale (VSSS) for measuring expectations and satisfaction with community-based psychiatric services in patients, relatives and professionals. Psychological Medicine 23: 511-23.
- WebMD. Retrieved May 19, 2017, from http://www.webmd.com/epilepsy/guide/treating-epilepsy
Riferimenti
Appleton R. E. and Sweeney A. (1995). The Managment of The Epilepsy in Children: The Role of the Clinical Nurse Specialist. Seizure, 4: 287-291.
Cecchetto P. (2011). Le indagini di costumer satisfaction nei servizi [dissertation]. Padova: Universití degli studi di Padova, Facoltí di Scienze Statistiche.
Epilepsy Action (2010). Best Care: the Value of the Epilepsy Specialist Nurse. Liverpool.
Foley J., Oates J., Mack C. and Fox C. (2000). Improving the Epilepsy Service: the Role of the Specialist Nurse. Seizure 9: 36-42.
FOREP Fondazione per la ricerca sull'epilessia e sindromi correlate (2012) Che cosa è l'epilessia.
Goodwin M., Higgins S., Lanfear J. H., Lewis S., and Winterbottom J. (2004). The Role of the Clinical Nurse Specialist in Epilepsy. A National Survey. Seizure 13: 87-94.
Higgins A., Elliott N., Varley J., Tyrell E., Downes C., Begley C., Clarke M. (2017). An Evaluation of the Role of the Epilepsy Speciaist Nurse and the Impacton Care: SENsE Study. Dublin: Epilepsy Ireland.
Higgins S. (2008). Outlining and Defining the Role of the Epilepsy Specialist Nure. British Journal of Nurse 17(3): 154-158.
Hopkins J. and Irvine F. (2012). Qualitative Insight into the Role and Practice of Epilepsy Specialist Nurse in England: A Focus Group Study. Journal of Advanced Nursing 68(11): 2443-2453.
Joint Epilepsy Council (2013). Guide to Writing a Business Case for an Epilepsy Specialist Nurse. Joint Epilepsy Council.
Hawthorne G., Sansoni J., Hayes L., Marosszeky N., Sansoni E. (2014). Measuring patient satisfaction with health care treatment using the Short Assessment of Patient Satisfaction measure delivered superior and robust satisfaction estimates. Journal of Clinical Epidemiology 67: 527-537.
Marshall G.N. and Hays R.D. (1994). The patient satisfaction questionnaire short-form PSQ-18. RAND, S. Monica (CA).
Meads, C., Bradley, P., & Burls, A. (2003). The Effectiveness of Specific Epilepsy Services. York: Centre for Reviews and Dissemination.
National Institute for Health and Clinical Excellence (NICE) (2012). The Epilepsies: the Diagnosis and Management of the Epilepsies in Adults and Children in Primary and Secondary Care. London.
Ruggeri M., Dall'Agnola R. (1993). The development and use of the Verona Expectations for Care Scale (VECS) and the Verona Service Satisfaction Scale (VSSS) for measuring expectations and satisfaction with community-based psychiatric services in patients, relatives and professionals. Psychological Medicine 23: 511-23.
WebMD. Retrieved May 19, 2017, from http://www.webmd.com/epilepsy/guide/treating-epilepsy