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Abstract

Aim: Caregiving of stroke patients has a long trajectory and the experiences of caregivers may change over time. Few studies have described the experience of stroke caregivers three months after discharge of patients from rehabilitation hospitals. This study describes the experience of stroke caregivers three months after patients are discharged home from a rehabilitation hospital.

Method: phenomenological study

Results: Seven themes emerged from analysis: deeply-changed life; re-appreciation of the relationship with patient and family members; increased workload; difficulties in getting support from the national health-care system; lack of preparation for caregiving; difficulties in coordinating caregiving, family and personal life; relief after patient's recovery.

Conclusion: A comprehensive understanding of stroke caregivers' experience during the three months after patient discharge can support the development of educational interventions aimed at improving the caregiver preparation for the care of patients.

Parole chiave: Caregivers, stroke, phenomenology."ƒ


Il vissuto esperenziale dei caregiver di soggetti sopravissuti ad ictus tre mesi dopo la dimissione dei pazienti da un istituto di riabilitazione

Scopo: il caregiving dei soggetti sopravissuti ad ictus ha una lunga e dinamica traiettoria, quindi l'esperienza dei caregiver può variare nel tempo. Pochi studi hanno descritto l'esperienza dei caregiver di soggetti sopravvissuti ad ictus tre mesi dopo la dimissione da presidi riabilitativi.Questo studio descrive l'esperienza dei caregiver di soggetti sopravissuti ad ictus tre mesi dopo la loro dimissione da ospedali di riabilitazione.

Metodo: studio fenomenologico.

Risultati: sette temi emersi dall'analisi: vita profondamente cambiata; ri-valorizzazione del rapporto con il paziente e familiari; maggiore carico di lavoro; difficoltí  nell'ottenere il sostegno del sistema nazionale sanitario; mancanza di preparazione per caregiving; difficoltí  nel coordinare caregiving, familiare e personale; sollievo dopo il recupero del paziente.

Conclusioni: una completa comprensione dell'esperienza dei caregiver dei soggetti sopravissuti ad ictus durante i tre mesi successivi alla loro dimissione potrí  supportare lo sviluppo di interventi formativi atti a migliorare la preparazione del caregiver.

Keywords: Caregivers, ICTUS, fenomenologia.

 

 

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Simeone, S., Cohen, M. Z., Savini, S., Pucciarelli, G., Alvaro, R., & Vellone, E. (2016). The lived experiences of stroke caregivers three months after discharge of patients from rehabilitation hospitals. PROFESSIONI INFERMIERISTICHE, 69(2). Recuperato da https://www.profinf.net/pro3/index.php/IN/article/view/247
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